Betty’s Reader Story

dementia 2Earlier this week on The Reader Online we gave a summary of the ‘Living Well with Dementia’ session at Shared Reading for Healthy Communities, this year’s National Conference of The Reader Organisation. The session presented some thought-provoking examples of how shared reading can impact upon people living with dementia, leading on the positive findings from CRILS‘ research publication, A Literature-Based Intervention for Older People Living with Dementia.

Each week, our Project Workers and many of our volunteers are sharing reading with older people and those living with dementia, providing time and space to relax, interact with others and engage in meaningful, stimulating activity. Not only do residents get to connect with great literature but their mood and concentration improves, with personal memories and stories beginning to emerge.

Here’s one of our Reader Stories from Betty, a resident in a care home – just one example of how taking part in shared reading can prove to be ‘a window on the world’ and much more for people living with dementia.

Betty is a regular at the Care Home 1 group. She is 93 years old. Since before Christmas, Betty’s health seems to have deteriorated, but she is still keen to come to the group and share poetry. One week when she was not in the group I was told she was in the quiet lounge and didn’t want to move. When I went to say hello however, she was most put out and said ‘I would have come, I love the poetry.’  So we read a couple of poems together, just the two of us.

Betty particularly likes poems about the sea. As a child she lived in Flint in Wales, but always visited Talacra on the coast and has clear memories of it. Eventually her father built a bungalow at Talacra and she recalls many holidays, including a sad one when some young men were drowned. Betty also has a strong memory of being cut off by the tide and being ‘guided’ back to shore by a dog. She never knew what became of the dog.

dementia 4Another great favourite of Betty’s is ‘Pedlars’ by W D Rands. She remembers it as one of the first poems she learned as a child. She and the other members of the group had a really good conversation about seeing gypsies travelling in traditional wooden caravans and remembering the tinkling sound they made as everything inside moved around.

Betty had a happy marriage, but does not seem to have had children of her own, although she fostered them. She also loved to garden and seems knowledgeable when we read poems about nature or gardens. Betty has plainly always loved to read. She says her mother loved poetry and she thinks that’s where her love of it originates. She recalls a mobile library (a horse and cart) coming to her childhood home in Flint. Her mother would keep the more ‘grown up’ books on a high shelf, but as they got older, Betty and her siblings were allowed to reach for these.

Find more of our Readers’ Stories on our website, where you can also discover more about shared reading with older people and people living with dementia.

Shared Reading for Healthy Communities: Denise’s Story

IMG_0487 72dpiThe Reader Organisation’s fourth national conference, Shared Reading for Healthy Communities, took place last month in London and we’re still enlivened and inspired by the day, full of insightful evidence and wonderful stories about the power of shared reading. For those of you who couldn’t join us or for those who simply want a refresher of what happened on the day, The Reader Online is bringing you a series of highlights from the conference over the next few weeks here on the blog.

There’s no better place to start than with how the day itself began, and for what was one of the highlights for many of our delegates, a personal testimonial from one of our Get Into Reading group members. Denise is a member of one of our Book Break groups in London, and shared her story of how the group has helped her to ‘rebuild her life’:

I joined Book Break at a time when I was at my lowest ebb. I had been ill for a couple of years and coupled with other problems I had not bounced back. I had withdrawn completely from society and had given up the many activities that I used to love.

This particular morning I had just come out of my doctor’s surgery and outside the library, which was a couple of doors down, was a lady handing out leaflets and telling passers-by about Book Break sessions that were starting in a couple of weeks’ time. I stopped to hear about the sessions and as we talked I started to feel uplifted for the first time in a very long while. Additionally, I had been undergoing ongoing surgery on one of my eyes, which left me not being able to see properly or read for lengthy amounts of time, so even reading a newspaper was difficult and I had not picked up a book in ages. That day will be etched on my mind forever, as it was the start on the road to recovery and getting back to living. Two weeks later I went along to Book Break and that was 4 years ago.

Book Break helped me to venture out again. I have rebuilt my life, have many pastimes and enjoy community involvement. It is unique because of its appeal to all ages, people from all walks of life, people with difficulties or problems and just people who want a dedicated time for reading, with no interruptions. It calms the anxious mind; it is an escape from everyday pressures; it is a sounding board for those with English as a second language; it is company, and I have seen the benefits that it has given so many people.

In our group we not only talk about the book; we often can relate to parts that match incidents in our lives or places that we have been too and our discussions take on new meaning. We research different things related to the poem or book and people bring in information to discuss the next week. For instance, we are currently reading Jamaica Inn and the story line left us wondering about law and order at the time when the book was set and information on this was found for us all to share.

I think I have most liked reading Spies by Michael Frayn. I did not really want to read this at the beginning; I hate anything to do with spies, the Cold War, etc. as I never understand them. When we read this, we were all sitting on the edge of our seats and could not wait for the next week to come; we all had theories and we were all wrong! A brilliant book.

This week (17th-22nd June) is London Creativity and Wellbeing Week, and we run shared reading groups in Barnet, Kensington and Chelsea, Tower Hamlets, Lambeth, Southwark, Haringey and Westminster each week which offer Londoners the chance to relax, rejuvenate and boost their wellbeing through reading and discussing books together.

To learn more about our work in London and see a full list of open groups, visit the Where We Work and Reading With Us sections of our website.

Carers Week 2013

Carers-Week-2013-logo1This week (10th-16th June) is Carers Week 2013, a UK-wide annual campaign that has the aim of raising the profile of carers, recognising and celebrating the contribution of the nation’s 6.5 million carers to the people they care for, their communities and society, and helping the public to identify themselves as carers, accessing the support they need.

Carers are amongst our hundreds of readers enjoying Get Into Reading groups across the UK each week. Sharing reading with others offers carers the chance to relax, take a break and enjoy some much needed time for themselves, with the company of others. Benefits of our Get Into Reading groups include reduced social isolation, stability and support, and increased personal confidence, all of which are of significant value to the lives of carers.

As well as being able to come along to our open community groups, we currently run a number of groups especially for carers in Liverpool (Toxteth Library), Wigan (Wigan and Leigh Carers Centre), Wirral (The Lauries Centre) and the South West (Feel Better With A Book groups throughout Devon). Information on all of our groups aimed at carers, as well as our open groups, can be found on the Reading With Us section of our website.

books and tea reading circleTo celebrate Carers Week, here is a Reader Story from one of our readers in London, describing the impact Get Into Reading has had on her life:

I heard about Book Break at a carers information event at Central Library and I went straight to the library as the group was about to start that very day. I was desperately lonely, had no friends and nobody to talk to. I had arrived in the UK a year previously and after the initial phase and excitement of setting up the household and getting the family settled in I was really feeling the isolation and lack of connection.

At home there is little intellectual stimulation or conversation. My husband is away at work from 8am to 8pm and when he gets home he is very tired. My son, who is 20, has cerebral palsy and epilepsy. This has been a big sorrow in our lives which we make light of but the underlying tragedy is always there, that he will never get ‘well’.

I started to attend every week as I just loved the group. I thrived on the mental stimulation and the real connection with other people. I have learnt to read and appreciate really difficult books and I think it has helped me feel better about myself. Somehow reading the book in a group makes it feel achievable when on my own I would not have even started.

Recently I enrolled on a short course at Oxford University which requires me to do a lot of pre-reading. Before attending Book Break I would not have had the confidence to read the required material, now I know I can. Book Break has shown me that it is possible to read something and not understand it initially but that with a little time, effort and application not only can I understand it, but I can love it.

One of the great things for me about the group is the regularity of it. As I don’t work I have little structure in my life, Book Break helps me with this. It happens every week at the same time and I know every week where I will be then.

When I think back to how my life was before coming to Book Break and how I am now, there is no comparison. I was lonely, isolated and struggling hesitantly to adjust in this new country. Now I feel part of something important and meaningful and have made some great friends. My life is so much easier. The Book Break group has opened my mind to a world of new experiences.

Read through more of our Reader Stories on our website, as well as finding out how you can Read With Us at our groups for carers around the country.